We’re highlighting five creators who are helping raise awareness for cystic fibrosis. They’re voicing the many ways people experience the disease by sharing a part of their life through written and ...

When my friend Michelle and I started a volunteer group, we looked forward to giving back to the community with our free time. What we didn’t anticipate was how deeply we’d become involved in a cause ...

BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million in Prime Medicine to continue the development of a gene editing therapy ...

My son was diagnosed with CF in 1965 and bravely defied the odds, living 28 cherished years. Then, decades later, I was stunned to receive a CF diagnosis of my own.

When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes.

When I decided it was time to start a family, I quickly realized that — just like living with CF — having a baby would mean preparing for the unexpected, especially when it came to finances.

Growing up with CF created emotional and physical barriers that complicated my friendships and romantic relationships, but I’ve learned how to hold on to the people who truly support me.

When I was first diagnosed with CF, I wasn’t supposed to live past the age of 8. Then Trikafta gave me the chance for a future I wasn’t prepared for. I’ve built a new life for myself and learned to ...

My evolving relationship with cystic fibrosis brings feelings of guilt and jealousy but also a deep sense of gratitude and understanding.

Notice and comment process provides an invaluable platform for patients to share real world experiences, concerns, and implications of proposed rules issued by HHS.