National Organization for Rare Disorders | NORD
Jan 6, 2026 · National Organization for Rare Disorders (NORD®) NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best …
Financial Assistance For Patients With Rare Diseases | NORD
NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year. With the respite program, I was able to select a family friend who I trusted, who was already …
Centers of Excellence - National Organization for Rare Disorders
NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being. Our belief is that the NORD Rare …
List of Rare Diseases | A-Z Database | NORD
The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease ontologies and it is an ongoing project made …
About Us - National Organization for Rare Disorders
Discover NORD's mission to drive rare disease research, support patients, and advocate for transformative healthcare policies nationwide.
Rare Diseases Support, Resources & Help | NORD
Can NORD help find a medical expert for my rare disease? Many patient organizations provide lists of medical experts. Search NORD’s Organizational Database to find disease-specific …
How NORD Can Help - Resources, Financial Support, & More
Help with Rare Disease Whether you need help getting a diagnosis, finding resources to assist in finding a specialist, finding a clinical trial, paying medical bills, or affording drugs, NORD is …
Patient Assistance Programs - National Organization for Rare …
Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, …
Research Grant Program - NORD
NORD Rare Disease Grant Program NORD Research Grants provide seed grants to academic scientists for translational or clinical studies that further development of potential new …
Events - National Organization for Rare Disorders
NORD® Rare Disease Scientific Symposium Rare disease breakthroughs don’t happen in isolation—they require collaboration, innovation, and a united commitment to progress.