The Baclofen Pump Update from Caleb’s mom - 7/23/2018 Today Caleb had an appointment to evaluate/refill his baclofen pump. For those who do not know, the pump was placed in February to help with the significant and debilitating muscle tone that Caleb was experiencing. Typically, when a pump is placed, the expectation is that it will be long-term. Today, the doctor decided to lower the dosage to see how Caleb’s body responds (a 10% decrease). The doctor pointed out a few things that encouraged ou
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The Baclofen Pump Update from Caleb’s mom - 7/23/2018 Today Ca…
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FacebookPray for Caleb
Still in shock. Still processing. But mostly? So incredibly grateful. 💔. To everyone who, shared, read our story, or quietly held space for us: thank you. You’ve reminded me that even from a hospital bed, I’m not alone. Today hit harder than most. Yesterday’s test dose of intrathecal baclofen worked — my physio could finally bend my knees for the first time in three weeks. That means the surgery would be effective. That’s huge. But the dose also left me unconscious for 12 hours, hallucinating o
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Still in shock. Still processing. But mostly? So incredibly grateful. 💔. T…
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