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0:45
It’s Rare Disease Day. This issue is close to my heart. My son, Gabriel, had a rare condition called Trisomy 13. We lost him when he was 9 months old, but he touched our hearts and lives forever. In his honor, I started Gabriel’s Symphony, a foundation that provides support to children with special needs, making sure they live a full life. I also principally authored & sponsored the Rare Diseases Act (RA 10747) to ensure the early diagnosis and treatment of rare diseases, enhance access to medic
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