Rowan's Story
5:15
Rowan's Story
774.5K viewsNov 27, 2018
YouTubeEB Research Partnership
Meet Ella Murray: The 9-year-old with skin as delicate as a butterfly's wing
5:59
Meet Ella Murray: The 9-year-old with skin as delicate as a butterfly'…
99.4K viewsMay 30, 2017
YouTubeWashington Post
Living with EB
Living with EB
Nov 12, 2019
eb-researchnetwork.org
Living in a Body of Open Wounds with Less than Half His Skin (John Hudson - Epidermolysis Bullosa)
14:24
Living in a Body of Open Wounds with Less than Half His Skin (Joh…
8.9M viewsDec 6, 2018
YouTubeSpecial Books by Special Kids
A Kid with Butterfly Skin (Epidermolysis Bullosa Simplex)
10:59
A Kid with Butterfly Skin (Epidermolysis Bullosa Simplex)
146.1K viewsDec 5, 2024
YouTubeSpecial Books by Special Kids
Explanatory video - Living with Epidermolysis Bullosa
2:14
Explanatory video - Living with Epidermolysis Bullosa
2.3K viewsNov 25, 2020
YouTubeDEBRA Austria – Schmetterlingskinder
The Boy With Butterfly Skin
6:09
The Boy With Butterfly Skin
1.4M viewsOct 26, 2012
YouTubeJoe Purdy
9:11
Behind the Mystery: Epidermolysis Bullosa (EB)
13.6K viewsOct 25, 2021
YouTubeThe Balancing Act
3:31
Help change the future for kids like Ella with Epidermolysis Bullosa (EB)
3.6K viewsNov 21, 2024
YouTubeSydney Children's Hospitals Foundation
2:44
Epidermolysis Bullosa Awareness: Remembering Elliana Rose
16.4K viewsApr 11, 2025
TikToksevannad
13:16
Marky's Mission (Helping His Mom Accept His Short Life Expectancy)
1.8M viewsMay 2, 2019
YouTubeSpecial Books by Special Kids
3:20
EJ had Epidermolysis Bullosa (EB) - "The Worst Disease You've Never …
168.1K viewsNov 7, 2011
YouTubedebra of America
2:47
Epidermolysis Bullosa clinic visit
18.2K viewsFeb 4, 2010
YouTubeRare Disease Day
0:28
🎵 EB The Kicks Look at the drip 💧 @EBKICKS #family #EBkicks
54.4K viewsSep 25, 2022
TikTokeb.family
0:39
Telling Kids Not to Eat Candy Until We're Back
171.7K viewsDec 1, 2023
TikTokeb.family
6:44
Emergency Room at the Hospital with EB
205.5K viewsJun 24, 2021
YouTubeApril and Davey
3:27
Butterfly child: Rare skin disorder affects Chapel Hill 4-year-old
21K viewsMay 7, 2019
YouTubeABC11
17:33
Hospital For Eb
1.5M viewsNov 19, 2019
YouTubeApril and Davey
20:00
A Teenager with Half a Brain (Life After a Hemispherectomy)
732K viewsJan 12, 2023
YouTubeSpecial Books by Special Kids
0:19
EB is one of the rarest - and most painful - diseases in the world. Th…
30 views2 months ago
TikTokbraintamil
4:59
EXPECTATION vs REALITY - Parents
10.7M viewsNov 17, 2018
YouTubeThe Bee Family
4:00
The Story of the H-E-B Buddy League
82.2K viewsOct 23, 2017
YouTubeH-E-B
15:54
Eb Can't Walk today? Is it an infection?
377.6K viewsDec 30, 2019
YouTubeApril and Davey
58:56
EVERY SINGLE VINE...EVER! (Eh Bee Family - Full Compilation)
24.5M viewsDec 22, 2016
YouTubeThe Bee Family
9:18
Heartbreaking Diagnosis on Eb's Knee
306K viewsNov 8, 2019
YouTubeApril and Davey
1:08
Does My Child have Eczema? | American Academy of Pediatrics (…
42.6K viewsFeb 24, 2021
YouTubeAmerican Academy of Pediatrics
10:22
Update on EB's Knee and her Medication
93.1K viewsNov 12, 2019
YouTubeApril and Davey
21:23
SEDATION AT THE HOSPITAL FOR EB'S STEROID INJECTION FOR A…
64.9K viewsMar 13, 2021
YouTubeApril and Davey
7:53
Bad News with EB's Knee
128.8K viewsOct 2, 2019
YouTubeApril and Davey
4:16
THE ANNOYING PARENTS...
4.9M viewsMar 21, 2018
YouTubeThe Bee Family
See more videos
Static thumbnail place holder