1 year seizure-free new YouTube videos! | Luke Holland
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1 year seizure-free new YouTube videos! | Luke Holland
30.5K views3 months ago
FacebookLuke Holland
STROLLER HACK FOR DYSTONIA AND SEIZURE TRIGGERS 💡💜 After Luke’s recent EEG, we learned that one of his biggest seizure triggers is simply lying on his back. As a mama, that broke me. I cried on the phone to my mom and said, “He’s only ever truly comfortable during tummy time on his Boppy but he can’t live on his belly forever.” Her response? “Well… why not?” That one sentence sparked an idea. She described a setup, and while we’re still dreaming up a better long-term solution, for now we rigge
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STROLLER HACK FOR DYSTONIA AND SEIZURE TRIGGERS 💡💜 After L…
6K views8 months ago
FacebookKayleen Espinoza
We’re moving forward with getting Luke sedated Botox injections to help manage his excessive high tone (spasticity) caused by cerebral palsy. This high tone doesn’t just make his muscles stiff it also contributes to jaw clenching, seizures, and difficulty with everyday comfort and movement. Botox isn’t just cosmetic it’s a medical treatment that works by blocking the overactive signals from nerves to muscles. For children with cerebral palsy and hypertonia like Luke, this means those tight, cons
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We’re moving forward with getting Luke sedated Botox injections to …
106K views7 months ago
FacebookKayleen Espinoza
Every morning and evening, Luke takes his Epidiolex, a prescription medication cannabidiol (CBD) Epidiolex is FDA-approved to help manage certain types of seizures, including those caused by rare epilepsies. It helps regulate nerve activity, inflammation, and muscle tone. For Luke, this means fewer seizure episodes, less muscle tightness, and more moments where his body can truly rest. It’s not a cure, but it’s a powerful tool in giving him more comfort, stability, and opportunities to engage wi
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Every morning and evening, Luke takes his Epidiolex, a prescription …
5.1K views8 months ago
FacebookKayleen Espinoza
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