got our hiking boots on

This was before we knew my son has childhood dementia It is due to Sanfilippo syndrome, a rare progressive disease that causes brain damage over time I wish we could go back… to laugh a little louder with him love him a little harder And join the fight against this disease with all our strength before it had already taken so much 💜💜💜

We are amassing a lifetime supply of medicine measuring cups. This is Merrick. He’s 11 and has Sanfilippo syndrome, a rare neurodegenerative disease that causes dementia in children. One symptom that has gotten worse over the past 6 months is headaches. 💔🤕 We only wish there was more we could do to help him 😔 #sanfilippo #childhooddementia #raredisease #headaches #approvehopenow

Bumblebee has always been his favorite Transformer. 🤖🐝 So this couldn’t have been sweeter for him. Merrick is battling Sanfilippo syndrome, a progressive neurodegenerative disease often called Alzheimer’s for children. He deserved this win 🏆 #sanfilippo #regression #childhooddementia #bumblebeetransformers #makeawish